October 27th, 2007
An acoustic neuroma also goes by the names: acoustic neurilemoma, acoustic neurinoma, vestibular schwannoma. The last one, vestibular schwannoma, may be the most accurate. How about buying the domain, www.vestibularschwannoma.com, you webmasters out there?
So, a vestibular schwannoma is non-cancerous. Benign.
It develops from the vestibular nerve. As it grows it damages the hearing and balance nerves, which is why some people develop those kind of symptoms.
You might have hearing loss on one side, ringing in the ears on one side, dizziness, or balance problems. Sounds a lot like old age, doesn’t it?
Numbness and paralysis of the face can also occur.
Hearing tests and magnetic resonance imaging (MRI) of the brain with infusion are the best, or at least, common ways to test for vestibular schwannoma.
Treatment options include watchful waiting, surgery, and radiation.
A few people with vestibular schwannoma will be diagnosed with neurofibromatosis, which is a genetic form of the disorder, and NF can mean tumors on both sides of the head.
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October 27th, 2007
I’m working on the website to get the message board going and this blog going. Both seem to be installed properly and working. An Acoustic Neuroma is a life altering tumor so I hope I can get this all done.
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October 27th, 2007
This is a website on acoustic neuromas. You, or someone close to you, may have been diagnosed with as having an acoustic neuroma and that’s why you’re here.
It’s scary. The good news is it’s a benign tumor, the bad news is that it’s a brain tumor inside your head and close to the brain - well, technically it’s not a brain tumor, but a cranial nerve tumor.
Some say acoustic neuromas can be removed by surgery with a small rate of recurrence and some say they can be treated by radiation with a small rate of recurrence. In fact, there is a raging controversy about this.
If you are a newly diagnosed Acoustic Neuroma patient you will need lots of information and help to make the best decision possible.
You may need to consult with radiation oncologists, neurosurgeons, and otorhinolaryngologists before you are done.
An acoustic neuroma can be treated by many specialists, but you only have one brain and one life to risk, so carefully evaluate your treatment options.
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October 27th, 2007
For some reason this post about acoustic neuromas is blank. How do I delete it?
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October 27th, 2007
How to handle the acoustic neuroma. It’s a personal choice that can be very difficult. I chose to watch and wait as long as I could, but then the story gets interesting….
Meanwhile, I’m trying to figure out how to use this blogging software.
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October 22nd, 2007
Who can make a post here? Can only the admin post or can registered users post?
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October 22nd, 2007
Welcome to the Acoustic Neuroma Foundation. This is the blogging part of the website. We hope to discuss a lot about acoustic neuromas, treatment, and problems here. Thank you. - Admin
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October 21st, 2007
Welcome to WordPress. This is your first post. Edit or delete it, then start blogging!
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